Cutest Little Blog

Chronically Mommy Is Returning Very Soon...

Chronically Mommy is returning very soon. My blog is currently under construction. I am doing some minor renovating and will begin blogging for the New Year, possibly before. I can't wait to start up again. I have missed all of my followers! I love every single one of you! You have helped me to become who I am today! I could never have continued my blog without all of your support. Please be patient, and please continue to support this blog as well as my other blog Now Read My HIPS! Pass this information on to anyone that you know may be interested in knowing...To be continued...

Being Chronically Mommy...

Welcome to the second in my chronic pain blog series. My first was my most well-known about my life struggle, balance, etc. with chronic pain and illness in "I Already Gave My Right Arm To Be Ambidextrous!" It is now titled "Now Read My HIPS!" and the focus has changed a bit to be more about how I am a woman with several joint diseases and conditions with a shoulder replacement and two hip replacements and am belly dancing! Visit Now Read My HIPS! to follow that entertaining, fun journey (alreadygavertarm2bambidextrous.blogspot.com). I also have a Blog Talk Radio Show with the same title about chronic pain and healing.

This blog is a little bit different. It has been focusing on my being a mommy and having a chronic illness. I have been and will continue to focus on health and pain info as well that I once wrote about in Now Read My HIPS! I think it is important to separate this from the rest of my life. It is not easy to have a chronic illness, but adding a child to the mix certainly has its share of trying times as well as beautiful, unforgettable moments.


I am so grateful for our little boy Mick. I can't believe that he is 6 years old as of December of 2016. Time has flown by! He is a dream come true. He has completed my confusing, complicated life. In a very huge way, he has made my life a lot more worth living. Although I have a wonderful husband, we always wanted a family, and I feel like we are now complete and happy. I have something to wake up to, and I have something to live for~Mick! It really is it's own microcosm of my life~Being Chronically Mommy!


...Being Chronically Mommy!

...Being Chronically Mommy!
...Being Chronically Mommy!

Baby Ticker

 Baby Birthday Ticker Ticker
Help, I need somebody,
Help, not just anybody,
Help, you know I need someone, help.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these days are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

And now my life has changed in oh so many ways,
My independence seems to vanish in the haze.
But every now and then I feel so insecure,
I know that I just need you like I've never done before.

Help me if you can, I'm feeling down
And I do appreciate you being round.
Help me, get my feet back on the ground,
Won't you please, please help me.

When I was younger, so much younger than today,
I never needed anybody's help in any way.
But now these daya are gone, I'm not so self assured,
Now I find I've changed my mind and opened up the doors.

Families are Forever

Blog with Integrity

BlogWithIntegrity.com

Tuesday, July 31, 2012

Blog Carnival Accepting Submissions Extended Thru Aug. 10!!

Do you still want to be a part of the Blog Carnival? Have no Fear!!!!!!!! The due date for accepting submissions for the Blog Carnival has been extended through Friday August 10th. This is so exciting because July is JA Awareness Month, and we are continuing the Movement with IAAM into August!!!

The Topic for submission is Why Is JA Different From OA?

This is extrememly important on so many levels. There are people out there who still don't know that arthritis can affect kids. The type of arthritis that affects kids is Juvenile Arthritis which is Autoimmune Arthritis which is different from our Grandma's Arthritis. It is not the same as a little arthritis in your knee!


Please send in your submissions and let us know why they differ! People need to know that when kids are sick from arthritis, it is often more severe and can be more life-threatening, but if they can catch it early, that is the key!!!


You can not be born with Arthritis but you can be born with Autoimmune Arthritis...Tell us about it!!!


Enter your submission in the Blog Carnival due Aug. 10th.  Let's continue JA Awareness. Email submissions to danalm_iaam@yahoo.com.



Let's Keep up the JA Awareness Movement!


Watch my recent video post total hip replacement...I hope it will inspire you. When someone has had a second hip replacement and a shoulder replacement and is in her 30's from AVN due to complications of Autoimmune Arthritis, people will realize that Autoimmune Arthritis is not the same as Osteoarthritis...Differentiate your diagnosis...Tell us why JA differs from OA...


I will give a prize to the blog post that has put the most time, thought and creativity into it...So...start writing!!

Wednesday, July 18, 2012

IAAM/WAAD is teaming up with the Arthritis Foundation (US) and EULAR to make WAD!!

I am Dana. I have Psoriatic Arthritis, Sjogren's & possible Lupus & Ankylosing Spndylitis. IAAM Waving for WAD!


IAAM/WAAD is teaming up with the Arthritis Foundation (US) and EULAR (European League Against Rheumatism) to make World Arthritis Day (WAD), October 12th, a ginormous awareness event for all the groups of arthritis. In doing this, we are asking you to participate in the WAVE for WAD campaign!

It's simple:

1. Take a photo or video of you waving OR doing the wave OR riding a wave, etc. It is your changce to get really creative!
2. Submit it to: http://www.worldarthritisday.org/waving-photo-upload
3. Each wave counts for a wave from your country! Periodic mentions of which countries are in the lead will be mentioned. Let's each work hard to get our countries in the lead! Let's lift up those rankings, people!

IAAM is making it even more fun by posting CALL TO ACTION Challenges. Should you choose to accept, you are in for loads of FUN!!!!!!!!

WAVE for WAD: Challenge #1- Take a photo of yourself or others waving while holding a sign that states the type of arthritis you have. This challenge is aimed to show that the arthritis diseases affect diffferent ranges of age,--a whole spectrum of ages from babies to the elderly--and there are different types of arthritis as well which can help to differentiate different branches. Feel free to use the specific name of the arthritis type(s) (ie: Psoriatic Arthritis, Osteoarthritis) OR a descriptive name (ie: Autoimmune Arthritis, Degenerative Arthritis, etc).

Submit it to: http://www.worldarthritisday.org/waving-photo-upload and see it posted live soon! Follow them on the WAD facebook page (https://www.facebook.com/worldarthritisday) as well as the WAAD facebook page (https://www.facebook.com/WorldAutoimmuneArthritisDay) and IAAM facebook (pagehttps://www.facebook.com/InternationalAutoimmuneArthritisMovement). Use it to challenge your friends and see if they will also take the Wave for Arthritis Challenge #1!...and when it comes to IAAM, it there is a Challent #1, you better believe there will be a #2, #3, #4, etc. etc., etc.,...

ATTENTION AUTOIMMUNE ARTHRITIS'ERS:
THIS IS YOUR CHANCE TO START CHANGING THE WAY THE WORLD VIEWS "ARTHRITIS"!


IAAM was brought in to the 2012 World Arthritis Day (WAD) campaign to help bring more awareness to Autoimmune Arthritis so LET'S
DO IT! While you may always simply upload a photo of you waving, IAAM has put an awareness spin on the Wave for WAD campaign by posting Call to Action Challenges!

Challenge #1: We are starting out easy, but in true IAAM fashion they'll get more challenging and more FUN ;). Take a photo of yourself, your friends, anyone with Autoimmune Arthritis, wave to WAD BUT ADD SOMETHING TO SHOW WHAT TYPE OF ARTHRITIS YOU HAVE. If you have an Autoimmune Arthritis disease, show it! If you have OA, write down Degenerative Arthritis and show that- The purpose is to start DIFFERENTIATING THE TERMINOLOGY FOR CHALLENGE #1.

Once you've done this and downloaded it to www.worldarthritisday.org your country will get another "wave" added to their total, so in addition to awareness you are also helping to make YOUR country the leader in the awareness campaign.

Come on Autoimmune Arthritisers! NOW IS YOUR CHANCE TO START CHANGING THE WAY THE WORLD VIEWS ARTHRITIS!

Friday, July 13, 2012

What Do YOU Think of When You Hear The Word " ARTHRITIS"?--Ask Parker

What do YOU think of when you hear the word “ARTHRITIS”?

When I was younger, if I didn’t know the meaning of a word, my mom would say “look it up”…well, I decided to look up “arthritis” for the fun of it…
Merriam-Webster dictionary defines arthritis as: “inflammation of joints due to infectious, metabolic, or constitutional causes; also: a specific arthritic condition (as gouty arthritis or psoriatic arthritis)”
Let’s dive in a little deeper… Most of us hear the word arthritis and think of the form called “osteoarthritis” and yet we use the word “arthritis” as if it is interchangeable with the word “osteoarthritis”.   We all know someone, usually an older person, who has arthritis…in fact, it is so “accepted” as the norm that many elders will say something like “oh, it’s just my arthritis acting up” if you ask why they are moving with caution in some way.  Our culture/society expects this because it’s only natural as one ages.  But why do we accept pain as acceptable…it’s not something anyone should have to experience.
Merriam-Webster dictionary defines Osteoarthrtits (OA) as:  arthritis typically with onset during middle or old age that is characterized by degenerative and sometimes hypertrophic changes in the bone and cartilage of one or more joints and a progressive wearing down of apposing joint surfaces with consequent distortion of joint position and is marked symptomatically especially by pain, swelling, and stiffness—abbreviation OA; called also degenerative arthritis, degenerative joint disease, hypertrophic arthritis”
OA is NOT what children with juvenile arthritis have!  Juvenile arthritis is a form of rheumatoid arthritis and more specifically is differentiated from OA because it’s an autoimmune arthritis.  Juvenile arthritis is not NATURAL in any of its various forms.  Yet, many families experiencing JA have heard at one point or another, something to the effect of “Oh, I know about that (referring to JA), I get arthritis in my …” or “My grandma has arthritis…” or  “I had tennis elbow and that really hurts…”  All of these comments are very well-intended.  They are a way of showing compassion or an attempt to relate to a disease that many know very little about.  But as a parent or a child/teen dealing with the disease, these comments are incredibly frustrating to hear spoken aloud because we painfully know that osteoarthritis is not synonymous with Juvenile arthritis in any way shape or form; except that they share one commonality in that the diseases both affect joints.  Juvenile arthritis (also known as juvenile idiopathic arthritis and juvenile rheumatoid arthritis) is an autoimmune disease.
Merriam-Webster defines rheumatoid arthritis as:  a usually chronic disease that is considered an autoimmune disease and is characterized especially by pain, stiffness, inflammation, swelling, and sometimes destruction of joints—abbreviation RA; called also atrophic arthritis”
and autoimmune is:  of, relating to, or caused by antibodies or T cells that attack molecules, cells, or tissues of the organism producing them”
and atrophy (verb: atrophic) is:  “decrease in size or wasting away of a body part or tissue; also : arrested development or loss of a part or organ incidental to the normal development or life of an animal or plant”
Juvenile arthritis (JA) comes in many forms and severities range from one end of the spectrum to the other.  Just as the various 100 plus forms of JA differ, so does the treatment.  Researchers are still learning about JA; there is still so much that is unknown.  And even if one treatment plan works for one child with the very same form of JA as another, it doesn’t guarantee it will work for every child with that form.  Each child is an individual.  Thus the challenge for pediatric rheumatologists is great.
I know that families who read our blog, especially whose child is newly diagnosed, may worry even more after reading about Parker.  But I want to reassure families to remember that just because something doesn’t work (or does work) for our child, doesn’t mean the same will happen if the treatment is used for their child.  I have heard that some families get really scared after reading about Parker.  We never intended to scare anyone, but we do ALL desperately need a cure for our children no matter where we are at in this JA journey.  Parker does have a severe and progressive form of JA called systemic on-set juvenile arthritis (also known as still’s disease).  Recently, we have learned that even with systemic on-set there are some who have less than 5 joints involved (oligo) and some who have more than 5 joints involved (poly) and that it’s children who are poly in nature that seem to have a more progressive form of the disease and that children with systemic on-set seem to have more immunology issues. For readers who are not familiar with systemic on-set JA, these children not only have joint involvement but also can have issues with rashes, fevers, and inflammation in any organ in the entire body   (source:  http://rheumatology.oxfordjournals.org/content/44/11/1350.full.pdf+html).  
Our family has chosen to be vocal about our experiences because we feel it is one way we can raise awareness and advocate for what is needed for ALL CHILDREN with autoimmune diseases.  They ALL deserve equal attention and we really feel that if researchers could figure out one autoimmune disease, it would help with making progress on all autoimmune diseases.

Michael, Logan, Parker, and Jesse (Logan's best bud) watch the sunset

 So tonight the rain clouds drifted away as we watch the sunset on another glorious day.  We send out love to all families dealing with Juvenile Arthritis in any size, shape, or form.  May we all see a CURE become reality for our future children!


IAAM's JA Awareness MOVEMENT....
 

Thank you for being the next Guest Blogger on both of my blogs. You are so wonderful for sharing your Personal JA Story. If you have any questions
for mom, dad, big brother, or this little warrior Parker, please go to their blog, Parker's Purple Playa Power..Pounding JA. "A mom, dad, big brother, and warrior sharing our perspectives of Juvenile Arthritis, a painful autoimmune illness affecting joints and internal organs…JA affects over 300,000 children in the US and many also have other autoimmune illnesses. There are multiple forms of JA; some less severe than others. Parker has system onset JA with overlap syndrome, along with severe allergies and asthma. Although there isn't a cure yet; we proudly pound at JA together with HOPE for a cure!" 


Whether you have JA, are a parent of someone with JA, or care for someone with JA, I am looking for Guest Bloggers all month long!!!! If you have a JA Personal Story you would like to share, please email your story to Dana at danalm_iaam@yahoo.com with your title, blog name and URL, your name as you would like it published on my two blogs and on IAAM's Facebook Public Pages. If you do not have a blog, that is OK, you can still share your story, simply send me your story in a Word Document with your picture attached and I will put it into my blog for you. It is that simple. ;-)
I also want to let all the JA parents out there (and JA supporters and advocates) that IAAM initially launched our Juvenile Arthritis Awareness Movement Monday, July 9th, dedicated to set a new standard in JA awareness :). We started the campaign by hosting a Video Contest unlike anything seen or done before--but until now awareness has not reached an acceptable level so we are going to change all of that! 


This initial campaign, a 60 secondish video commercial competition for YOU to help blast dozens of short messages to the world so others can understand. The subject? JA and OA: Differentiating Arthritis. These short segments should simply show WHY JA is different than OA.
Because people are not always comfortable with new things, our video idea is a totally new idea, we want to make sure everyone has a chance do a good job, and we want to make sure we have enough time to make it fun for everyone, IAAM CEO Tiffany Westrich is using her time to host her "training sessions." Tiffany is extremely talented at her training sessions, and they should run long enough so that everyone gets enough help to understand how to do the videos and turn brainstorming concept into imagery.  She will also tape the training sessions like a course on brainstorming concept to imagery, which she taught in college. We will launch a new call for videos from the 16th through the 30th of August.
Voting will take place in September. 3 Finalists will be selected,  resulting from IAAM voting and 20% PUBLIC voting so you can blast that sucker everywhere! One Grand Prize winner (selected in October) will receive a complimentary rental house7 night stay, 4 bedroom, 3 bath property in Orlando Florida just a few miles from Disney and Universal Studios. Prize donated by FloridaHolidayHomes4U. Restrictions apply.

We KNOW you can say what the differences are, but if you aren't sure how to put those words into an effective video HAVE NO FEAR! As part of this initiative, remember that Tiffany, IAAM CEO and Founder, happened to also teach advanced design at a college level, which included how to take concepts into imagery. She is the one who designs all of our posters and videos, and she is donating her time to personally teach you how to do it too!

Interested in learning more?! Awesome! Email JAContest@IAAMovement.org for more details!!!

 
IAAM's Juvenile Arthritis Awareness Movement has begun!


Time to put your thinking caps on and decide how YOU would like to see JA differentiated from OA in short, impactful video form...and IAAM will TEACH you how to make your visions a reality! Sign up today to participate at JAContest@IAAMovement.org!
 

WATCH THE VIDEO: http://www.youtube.com/watch?v=DmfsJ4IP9_E&feature=g-upl





In the meantime, I am hosting a Blog Carnival on my 2 Blogs and facebook Public Pages. Please send your blog posts to Dana at danalm_iaam@yahoo.com. The Blog Carnival should help with your brainstorming of ideas for the making of your video for the JA Video Contest. The Topic for the Blog Carnival is also JA and OA: Differentiating Arthritis. WHY  is JA different than OA? All Blog Carnival submissions are due July 27th and will go live on August 4th.

Saturday, July 7, 2012

Alexa: My Story


When people ask for my story I’m never really sure where to start. Do I start with when I first noticed the pain, when I was diagnosed or where I am at now? For now I will start with when it all began. I had just turned 14 years old, and I was soon to be a freshman in high school.  

I was so excited, it was the next step in my life, and I could finally do a sport that I was good at, golf. Another new thing to me was marching band. Practices for both started in early August. The more active I was the more I was noticing pain. It all started in my wrists and my knees. My wrists would pop, snap, and crack every time I would pull the club back, it got so bad to the point that I couldn’t even hold the club up very well. My coach sent me to our HS athletic trainer to have her look at them. When I talked to her she said that yes they were swollen, but it was probably just tendonitis. She wrapped them up for me and I was on my way. As for my knee marching band was starting to get the best of me, both knees hurt, only one popped. After awhile my parents gave in and sent me to an orthopedic surgeon in town. Worst decision ever made. 

When we went he diagnosed me with an extra band of tissue in my right knee, after so long though with no results we transferred to DeVos Children’s Hospital. There they took care of my knee and diagnosed me with a torn meniscus which 3 surgeries later would be fixed. Even though there was nothing visibly wrong with my left knee he was convinced the pain was coming from somewhere. He did some lab tests and got my inflammatory count back, mine was 7x’s what the normal persons is. I didn’t let that stop me though, I continued to do marching band, golf and even added dance team. So at age 15 I was sent to some doctor called a Rheumatologist, at the time I had no idea who it was nor why I was going there. My first visit the doctor looked at me and said I’m not too worried about your knee right now I’m worried about your wrists and ankles. Then it all made sense the pain I was putting up with as a freshman, and it just continued. From there I was sent in for several tests and started on some medications, along with scheduling several MRI’s. I had an amazing doctor who was determined to find out what I had and what he could do to help me. At age 16 I decided to do swimming instead of golf, along with continuing marching band, and dance team. Swimming was not such a smart decision, the repetitive motion was killer, so I switched to diving. Diving I found a true passion for I loved it so much. The only issue is due to everything I could never get as high as the other divers or stand as much as they could. I still pressed on though. When it came to marching band everyone gave me so much crap about my invisible disease, I was  a faker in their eyes because you couldn’t physically see the hurt, after that I was done. I couldn’t handle going home crying every night because of the pain mixed with the things that people would say to me. The rest of the year pretty much went the same way the whole time I’m being put on a mix of medications, none of them that ever did anything for me. Going into my senior year at age 17 things took a huge turn for the worse. Everything hurt, my rib cage which made it hard to breathe, my back which made it hard to sit in a chair, my ankles which made it hard to jump for diving, my knees, everything and anything that could hurt did. Then I received my diagnosis. Ankylosing spondylitis. It was hard to hear for so long I feared the unknown, but now I was scared of the known and what the future had in store for me. After that things continued to decline, I was put on meds that made me sick. The pain grew to the point I had to stop the activities that I love. It was all over terrible. It finally hit a plateau going into my freshmen year of college. I stayed home and went to a community college. And then here I am now. 

I’m going to be a sophomore in college, I’m going to Grand Canyon University in Phoenix, AZ. The reason I decided on there was because the constant dry heat. My AS has not been doing too great, recently the doctor told me, that I may not ever reach remission. I’m on sulfasalazine, relafen, remicade, and temporarily on prednisione. It’s been a rough journey, I’m right now a camp counselor at a YMCA camp, and I love it, but I would be lying if I said that it was easy. The fact that I have AS will always make life a little more complicated, sometimes I have to say no to things due to my limits. Going through it at such a young age I think made it harder. High school is hard enough already, but dealing with an invisible disease that people don’t understand makes it even harder. One time I recall my legs got so painful, I just couldn’t even walk on my own anymore and so I used crutches. I became known as the class faker. 

I wish people could understand that arthritis is a tough thing and  adults aren’t the only ones suffering, kids get arthritis too




 IAAM's JA Awareness MOVEMENT....


What a great pleasure to have Alexa as the second JA Guest Blogger on both of my blogs. Thank you for sharing your personal story. If you have any questions for Alexa, please ask the questions through me and I will send them to her. If you have a JA Personal Story you would like to share, please email your story to Dana at danalm_iaam@yahoo.com with your title, blog name and URL, your name as you would like it published on my two blogs and on IAAM's Facebook Public Pages. If you do not have a blog, that is OK, you can still share your story, simply send me your story in a Word Document with your picture attached and I will put it into my blog for you. It is that simple. ;-)



Whether you have JA, are a parent of someone with JA, or care for someone with JA, I am looking for Guest Bloggers!!!! It is JA Awareness Month, and IAAM is launching its Juvenile Arthritis Awareness Movement! We'll launch this initiative on Monday July 9th so check back! Until then, a sneak preview: JA isn't the same as having Degenerative Arthritis and YOU will have the opportunity to tell the world why! Stay tuned, it's about to get goooood ;).  Watch out because IAAM's new JA Campaign is gonna blow JA Awareness out of the water! In true IAAM style it will be a little out-of-the-box and will allow YOU to shine!
 
Share this poster with your friends...see if they know the answer.


My Journey with JRA

My name is Shelley-Rose Cook, and I’m going to be a senior in High School in the fall. I’m 17, and very soon going on 18! 

I’m told I started exhibiting JRA symptoms when I was about 1-2 years old, and was finally given the JRA diagnosis when I was about 4-5 years old. I’m from south Florida, but due to my parents’ jobs, I have been residing in Europe basically my whole life, and going to one of the American schools overseas. However, I’m moving back home to the US in one year, because I will be starting college! I have JRA, which recently developed into Rheumatoid Arthritis, as well as Endometriosis.
In terms of the effect of the illness, I wish I had been told how my life would be affected. Although I was very young when I was diagnosed and placed on a string of meds, due to an unfortunate series of events about three years ago, I don’t really remember anything from before that. As such, I do not really remember what it was like to have RA. Ironically, during and after the series of unfortunate events, I was lucky enough to experience a two-three year “hiatus” of the RA symptoms. However, over the last seven months, my RA has come roaring back. Currently I have it in both feet, knees, hips, and both wrists. In addition, the RA has been causing a long & serious bout of tendonitis too – located in both my feet, both hands, and both knees. It’s been pretty painful! Another thing I wish I was told – all the side effects of the meds! Frequent nausea/vomiting, headaches, infections (and not just limited to the sinuses…), etc. Sometimes I get sad and/or somewhat depressed because I’m “young, supposed to be out having fun and being stupid”, and all that fun stuff. However, although the RA has affected my life significantly over the last six months (i.e. I’m not able to go out and have fun with my friends, and I have to miss a lot of school due to infections, severe flares, and hospitalizations), I have tried not to let it affect my life too much. I have a lot to look forward to in my life right now! One of the things I’ve learned about having RA is that you can't outsmart or beat your illness, but you can & will manage it well. It has taught me how to set my own limits, and how to communicate them to others. I’ve also learned to enjoy the little things in life! One of the things I’d like to share with others or newly diagnosed people with RA is that you’re not alone. There are many other people out there with the same or similar illness. It can and will be difficult to find a decent health care professional, and at the beginning it’ll be hard to navigate your way through this illness – all the medical terms, the effects of the illness on your body and your life, all the medication(s), etc. But fear not! There are plenty of resources available for you and your loved ones/those helping you.   
Side effects of the illness and medications will also be a big blow, as well as the downs of having to suddenly deal with this new & prominent issue. However, you'll eventually come to a solution, find medication(s), and a system that works for you. Your life will certainly be different than it was, but you can still manage to live your life.
Having to learn & deal with RA has come at an unfortunate and difficult time in my life - I'm 17. At this age, everyone your age is out; living their life - being young, foolish, and living their life as they want. The RA, among other personal issues, has been known to lead me down a dark path during and at various times, which is and can be really scary. Somehow I’ve managed to come out the other side a better person, which I count as a blessing! If I had to sum up one silver lining about having RA, I'd have to say it's made me mature beyond my years, for which I am grateful. Henry Ford once said, “Whether you think that you can, or that you can’t, you are usually right.” This quote has and continues to help me significantly! 

 IAAM's JA Awareness MOVEMENT....


 I was honored to have Shelley-Rose Cook as the first JA Guest Blogger on both of my blogs. Thank you for sharing your personal story. If you have any questions for Shelley-Rose, please ask the questions through me and I will send them to her. If you have a JA Personal Story you would like to share, please email your story to Dana at danalm_iaam@yahoo.com with your title, blog name and URL, your name as you would like it published on my two blogs and on IAAM's Facebook Public Pages. If you do not have a blog, that is OK, you can still share your story, simply send me your story in a Word Document with your picture attached and I will put it into my blog for you. It is that simple. ;-)


Whether you have JA, are a parent of someone with JA, or care for someone with JA, I am looking for Guest Bloggers!!!! It is JA Awareness Month, and IAAM is launching its Juvenile Arthritis Awareness Movement! We'll launch this initiative on Monday July 9th so check back! Until then, a sneak preview: JA isn't the same as having Degenerative Arthritis and YOU will have the opportunity to tell the world why! Stay tuned, it's about to get goooood ;).  Watch out because IAAM's new JA Campaign is gonna blow JA Awareness out of the water! In true IAAM style it will be a little out-of-the-box and will allow YOU to shine! 


This poster was designed by IAAM for World Autoimmune Arthritis Day 2012 (held on May 20th). This JA Awareness Movement will be the 1st of many subjects we will revisit from WAAD. And you thought World Autoimmune Arthritis Day was over...pshhh, you're not getting rid of us that easily ;)

Thursday, July 5, 2012

ATTENTION Juvenile Arthritis Bloggers: Looking for Guest Bloggers!

Attention Juvenile Arthritis Bloggers, Writers and Authors. Whether you have JA, are a parent of someone with JA, or care for someone with JA, I am looking for Guest Bloggers!!!! It is JA Awareness Month, and IAAM is launching its Juvenile Arthritis Awareness Movement! We'll launch this initiative on Monday July 9th so check back! Until then, a sneak preview: JA isn't the same as having Degenerative Arthritis and YOU will have the opportunity to tell the world why! Stay tuned, it's about to get goooood ;).  Watch out because IAAM's new JA Campaign is gonna blow JA Awareness out of the water! In true IAAM style it will be a little out-of-the-box and will allow YOU to shine! 

I am looking for Guest Bloggers to appear on both of my blogs and on IAAM's public Facebook pages. If you are interested in being a Guest Blogger, please send me a Personal Story of JA. It can be about you personally, your child, someone you know or someone you take care of. We need to spread AWARENESS so make sure your story is a true representation of a person with JA to help others understand what it is like to live with JA, to love someone with JA and to be a child with a disease that is all too often confused with what old people get. 

Email your Personal Story of JA to Dana at danalm_iaam@yahoo.com and include the post title, the blog title and url. If you do not have a blog and have it in Word, then send me the Word Document. Make sure you give me your name as you would like it to be published on my blogs and the IAAM public Facebook pages. Also, please give me a couple sentences that summarize your story. I will try to publish all the stories that I receive. Thank you!


This poster was designed by IAAM for World Autoimmune Arthritis Day 2012 (held on May 20th). This JA Awareness Movement will be the 1st of many subjects we will revisit from WAAD. And you thought World Autoimmune Arthritis Day was over...pshhh, you're not getting rid of us that easily ;)

Tuesday, July 3, 2012

JA Isn't The Same as Having Degenerative Arthritis...

IAAM is gearing up to launch a MAJOR JA Awareness Campaign in honor of JA Awareness Month and in true IAAM style it will be a little out-of-the-box and will allow YOU to shine!
 

We'll launch this initiative on Monday July 8th so check back! Until then, a sneak preview: JA isn't the same as having Degenerative Arthritis and YOU will have the opportunity to tell the world why! Stay tuned, it's about to get goooood ;). 








This poster was designed by IAAM for World Autoimmune Arthritis Day 2012 (held on May 20th). This JA Awareness initiative will be the 1st of many subjects we will revisit from WAAD. And you thought World Autoimmune Arthritis Day was over...pshhh, you're not getting rid of us that easily ;)

Watch live streaming video from arthritisfoundation at livestream.com